So I decided I coudn’t quite start taking the extra steroids today. 30mg up to 60mg per day. My idea, I asked for it, I just want to think a little longer before I do.
Logically I know it’s the right thing to do, but emotionally it’s a big step. A few years ago a friend of mine was diagnosed with Irritable Bowel and all he could do to alleviate his problem was take steroids for a short time but then after stopping, his problem would soon come back again – the doctor wouldn’t let him take them for mny longer because of the dangers. He told me at the time it was scary because of the possible side-effects and he couldn’t take them for long, but his predicament has always stuck with me.
Me being told by my doctor that I might have to permanently take them without break isn’t great news is it?
It boils down to take these and suffer the possible consequences or definitely die of an infection later.
So I’m going to take them, I have made that decision, I just need another day.
But I don’t intend on taking them indefinitely, whatever the outcome. I will wean myself off them and onto a steroid sparing agent such as Mycophenolate Mofetil (MMF) or better still if my body will take it, onto antiobiotics and vitamin B3.
FML.
But there are people who are far worse off than me, and you know what? I was bound to suffer something like this as I got older, I just wasn’t quite ready for something as I now find it, as serious as this. There are worse things I’d rather not have though, so you know… Result.
