weight

88kg God Damn It Yes!

88kg God Damn It Yes!

Finally.  It’s taken over a week but that whole kilo has just registered as gone and I’m now at 88kg.  Yes!

Now I know I could have lost this sooner if not for water retention, but the good news is when I eventually get off the steroids – and I WILL – then after a few days my body will do a little catch up as it adjusts to no steroids and I’ll probably drop a few kilos almost overnight.

I’m both relieved it’s gone and a little hyped to know I can still lose weight due to good diet and exercise despite the steroids saying “Go on… One little pie and chips won’t hurt.  You know it makes sense.”

Yeah.  Well, I sort of agree Mr Steroid.  Occasionally.  Let’s say one treat day a week.  But it’s not like I’ve gone insane on cutting back, I’ve just changed things down a little.

#1 – I don’t eat anything I feel like any more.  I’ve done that for years and gradually seen the weight go on.  Just a little bit of self discipline can work wonders when you’re ready in the heady.  This disease has definitely made me ready in that place, and determined to achieve remission.  I can do a little bit of dieting to get rid of some fat – fat which can adversely affect the immune system, which I find frustrating now I know that.

#2 – I found some things that fill me up and that don’t seem to get repetitive. In my case I’m lucky I can eat beans on toast and NEVER get tired of it.  So I switched to wholemeal bread for my toast as it has more roughage and is harder for the body to digest.  I have two slices with Lurpak spreadable as it’s not “whole” butter it’s cut with rapeseed oil, and then a third of a tin of baked beans on it.

Calories?  Two slices of wholemeal bread at 95kcal each (white bread is about the same), and a third of tin of beans at about 105kcal bringing it to 295kcal the entire meal if you ignore the small amount of spread I put on.  Let’s say 325kcal total.  I’ll have that for breakfast with my prescription tablets or for an evening meal and feel fed for hours.  I know that if I feel I have to eat anything else until my next meal then it’s usually not necessary and I can avoid it.  A cup of coffee or a few sips of refridgerated tap water will abate any hunger pangs.  And I ONLY eat now when I’m genuinely hungry, no fixed meal times.

I have two or maybe three meals per day depending on how I feel, but usually three.  One of those is my “old faithful” above, then another will be a nice big bowel of porridge (very filling at 70g oats with water = 245kcals) or every other day I’ll have something more substantial like a piece of unbreaded cod fillet with some boiled (scrubbed not peeled) potatoes and a big pile of peas.  I like peas almost as much as I like beans.  Or I may have oven chips instead of boiled potatoes.

Another meal is half a tin of stewed steak from M&S (delicious), again with boiled potatoes and peas – it’s REALLY nice.

The other night I decided to have a bit of a blow out steak and chips, with pepper sauce, peas and tomatoes.  I didn’t enjoy it as much as I thought I would and I struggled to eat it (but I did) as I think my stomach has shrunk a little now.  And then a few nights before that I had a small steak pie and chips.  Whereas in the past I would have eaten and really enjoyed it, I only found it okay and a little stodgy and when I looked I saw there were 400kcals in the pie.  Maybe I won’t have that again for a while.

Other notes worth sharing are I keep a little stock of small apple pies in and if I feel like I need it after an evening meal, I’ll microwave one for 30 seconds so it’s nice and hot, and put some ice cream on it.  No hard and fast rules on that, but I’d say maybe 2-3 times in 7 days.  Or instead of the small apple pie, I might have a couple of fig rolls and do the same.

During the day or even at night after my meal I might decide to have a small bowl of fruit, and I’ve found that a jazz or gala apple washed and sliced and diced, and mixed in with a half inch thick circle slice from a honeydew melon (diced) is REALLY delicious and filling.

The real takeway (hmm, chinese lemon chicken) though is that I’m not being hard and fast with my diet.  I’ve just found a few things I like that work for me and I’ve been cycling them.  And then every so often, maybe once a week, I have something I really fancy.

Small changes and your body starts to adjust.

Finally, as well as the food I’ve described above, with my prescribed tablets I’ve also been taking a daily multivitamin (folic acid, B vits, C, and iron) to relace anything I might be missing from a more robust diet, and also a 2x day calcium and vit D tablet for bone protection from osteoporosis.  Mix in at least a 30 minute walk each day, and I think I’m finally being sensible about food and exercise for the first time in my life.

It’s only taken a deadly autoimmune disease to get me on track.

 

Posted by Frank Haywood in Diet, Exercise, Personal
Getting Obsessed With My Weight

Getting Obsessed With My Weight

Okay… I’ve been reading some more about fat and steroids (corticosteroids).

It’s fairly common knowledge that you get a redistribution of fat around the body when on steroids, and there are some good theories about why this happens, but essentially it’s straight forward biochemistry.  We’ll get onto that in a minute as I don’t think there’s enough (or posssibly any) layman’s explanations of why this should be going on in your body.

But first, let’s look at why I’m getting obsessed and possibly a little irritatated about this.

Before being diagnosed with PF and being put on corticosteroids, I had already decided and been advised by a nurse at my local GP to lose some weight to avoid complications over the next 10 years, such as strokes, heart disease (like I need another) and diabetes, as I am pre-diabetic.  I totally accepted that to heart, and the steroids are messing it up.

I don’t like it.

As if by magic last night, I suddenly realised that if you ignore the pinkness and the rash on my face (which IS getting better VERY rapidly at 60mg/day of Prednisolone, plus 1000mg Of MMF), then I magically look 10 years younger.  Where have my wrinkles gone?

The steroids gottem.

Okay, I can live with that, my face doesn’t look too different to the way it always has, it’s just not 57yo wrinkly any more.  It now looks like I’ve had a few skillful shots of botox all over to remove the wrinkles, and the nice thing is I haven’t lost the definition of my face… yet… so it does still look like me, and even a younger me.

The problem I now see in front of me is that my face won’t stay this way and it will progressively start to puff out and go round.  “Moon face” you see it described as online.  My first thoughts were I may have no choice about this happening, and it will go ahead with or without my input.

And then, I started reading about what causes this to see if anything can be done about it and it turns out I think I can.  I could be totally wrong, but maybe I can do something about it and the reason I think that is because some people aren’t affected by corticosteroids in this way.  One person ballons and puts on weight, and another doesn’t.  This could be down to purely individual physiological reasons, but maybe the ballooners can do something about it with a modified diet.  I am all for trying this.

I will try to keep this short and sweet and as non-technical as I can, both for myself for future reference and as an explanation to friends and family (and anyone else finding and) reading this.

Why do I do these things?  Because I need to know. I’ve always been driven to understand the world and what makes things tick – it’s a sort of a curse of the scientific mind when you don’t actually want to be a scientist because you don’t have the patience or inclination, but still want to know WHY?

I’ve gathered the information together I needed to work this out with a couple of web pages, plus some dictionary definitions to explain some technical terms.  I’ll tooltip them so you can hover over them without having to go hunt them down like I did.

Ready?  Let’s go.

Why Do Steroids Make You Put On Weight?

Posted by Frank Haywood in Diet, Exercise, Pemphigus, Personal
Weight 89kg

Weight 89kg

Second day running that I’m 89kg on the bathroom scales so that looks like it’s for real. No bouncing up and down with this, I went straight from 90kg to 89kg and it’s stayed there.  So first target of moving from 95kg to 90kg complete, and now into second target of 85kg.  I’m hoping to achieve that in the next couple of weeks before the family gets back from Australia, but I’d also be happy getting near it.

I’m NOT patting myself on the back here, but I’ve been on the steroids for 3 weeks now and I’ve not really been hungry in that time, and when I have I just grab a coffee or some water and carry on working.  Maybe it’s early days and it will get worse, or maybe it’s my pure bloody minded determination this time round.

When I took Prednisolone in April for a month I wasn’t really bothered about putting back on the weight I’d just lost as I saw it as a temporary thing.  I ate constantly and couldn’t rid myself of the hunger.  Now I’m a little bit more sure I need to drop the weight for good so that’s what I’m focussing on, and I’m eating different foods now, which I have no doubt has helped me. Not having the family here has helped a lot too as I’ve been eating when I’m hungry rather than at mealtimes.  I think the problem is that in the past I’ve eaten when I’m hungry – which I’ve always thought was the right way of doing things – and THEN sat down to eat a meal at dinner.  Sort of doubling up, and that’s where I think has been my downfall.  I can’t wait for the family to come back, but I’m gong to have to keep up this new lifestyle so it will be a minor upheaval I reckon and I’ll have to continue to do my own thing.

It’s a bit hard when you like minced beef and onion pie and chips fro the chipy, and cake and ice cream, not to do that any more.  Or at least greatly reduce it.  No pie for 4 weeks and hardly any chips.  I still let myself have a small apple pie and a bit of ice cream every other day though.

I’ve been mostly eating things like porridge in the mornings, changed from larger sliced white to smaller whole bread slices and limited my consumption of that to no more than 4/day, but usually just a couple of slices.  Luckily for me, I REALLY like baked beans which it turns out don’t have as many calories as you think. So I can help myself to two smaller slices of wholemeal bread toasted and buttered with beans on and I feel really full up afterwards – and I’ve enjoyed the meal.  It was a nurse at my local GP advised me to switch to wholemeal as it takes longer to digest and fills you more.  She also advised me to eat boiled potaoes instead of mash – which I’ve always preferred anyway – and to leave the skins on for extra roughage.  So I’ve been doing that, scrubbing them and boiling them and they’re great.  I haven’t quite worked out how many to put in the pot yet and so tend to do too many, but I then chill any that’s left and occasionally take a bite from the fridge.

I’ve also prepared myself for some “grazing/snacky” food and been eating diced apples, bananas and I have a honeydew melon to slice up.  Also more tomatoes, cucumber, that kind of thing.  But I’ve not been overdoing it on the snacky front, I’ve been pretty damn good really.  I’d be very annoyed with myself if my calorie input went up because of grazing food.  Yeah I’m a bit determined, have I said?

Going for my daily brisk walk in a bit as it helps pump my metabolism up.  Then I’ll shower and go through my daily new cleansing ritual of steroid cream (betamethasone valerate and clioquinal) and Cetraben on my skin.  I like the Cetraben – it’s got paraffin in it and stings for a few moments but then feels great and seems to calm my skin right down.  In fact I’d really like to only use the Cetraben as I can just slather it on as a barrier protection for my skin until it heals.  The steroid cream takes ages to apply and rub in as I have to be careful not to over do it.

It’s early days of taking the immunosuppressant – Mycophenolate MoFetil (MMF) 500mg – just 5 days so far and it takes 4 months to get working properly, but when it does in say a months time I’ll have to avoid the sun or cover up as MMF can cause skin cancers as melanin production (your suntan) is controlled by the immune system.  I’m probably fine at the moment, but it’s on my mind as it’s just gone sunny outside while typing this.

No sign of the upper arm trembles I experienced a couple of days ago, so I was probably correct in my thought that my body was either adjusting to the higher dose of steroids as they settled in, or it was an emotional thing.  Yeah I’ve been a bit emotional about it all.  It will pass I know.

Posted by Frank Haywood in Diet, Personal