pemphigus

And Yet Another GP

And Yet Another GP

Today I saw another GP, this time he actually used to specialise in dermatology, so some knowledge here about what my condition might possibly be.  We had a good long chat and he said the rash could have been triggered by a virus and asked me if I’d had a virus around that time in November / December and I showed him the wart that I’d been trying to freeze off with a kit I’d bought from the local pharmacy between the thumb and forefinger of my left hand.

“Yep, it could be that. I’ll freeze it off for you now,” and so he did.  It stung a bit, but you know, it’s worth it if it’s actively causing the rash.  I’m getting a bit desperate as the rash is still spreading slowly and implacably.  It’s in my face too now.

He prescribed 30mg of Prednisolone steroid with a tapering off off by 5mg every few days after the first week, and discussed the dangers of using steroids but that he really thought they’d help in a case like this.  I was a little wary, but extremely happy this was getting some attention now.  I’ve since been researching the use of steroids and see that yes, they’re very potent and VERY dangerous for long term use, and that this was quite a high dose and should start to shift things.  Of course I found out that it didn’t, but it did seem to completely arrest any further development while I was talking them right down to 5mg, but then when I tapered and stopped after about 3-4 weeks, the slow progression started up again.

That information was filed away in my brain for later use.

He told me to come back in two weeks and that he’d refer me to the local hospital, which he did.

Great! Progress!

Posted by Frank Haywood in Pemphigus, Personal
Seeing Another GP

Seeing Another GP

Today I went to see another doctor at the local surgery to discuss this rash that’s spreading even more.  She prescribed some hydrocortisone cream, but I’ve already tried lots of creams over the last few weeks and they don’t seem to do a thing.  I think I need a referral for a biopsy to see what’s going on, but I agreed this time round to try this other hydrocortisone cream first.

I’m not very confident this is going to work, but I’m being a good patient and will try them.

Posted by Frank Haywood in Pemphigus, Personal
First Seen

First Seen

This is just a backdated post to say WHEN I first noticed a little itchy mark on my left shoulder which I later discovered was the beginnings of the Pemphigus.  I’m doing it for completeness so the whole story is here on the blog.

It was about the end of November, beginning of December that I gradually realised I kept scratching at my left shoulder every so often.  I took my shirt off and looked in the mirror.  It looked like it was a little red blistery infection, nothing like a mole – cancer goes through your mind – and I showed it to my wife Sue and put some Savlon on it.

It was coming up to Christmas, and I was busy, so I put off going to the docs until the beginning of January.  In that time it hadn’t really become any bigger.  She took a look at it and said she thought it was an infection and prescribed some antibiotics, which I was quite happy with.  I went back for another course as not only had it not got any better, it had spread and I noticed a couple of marks on my other shoulder and a couple on my chest.  At no point in these early stages was I worried.  Why would I be?  I’d had mild infections in the past, this was just something like that.  An annoying rash.

How wrong can you be?

Posted by Frank Haywood in Pemphigus, Personal